Immunodeficiency Canada has participated in the Scotiabank Charity Challenge since 2012 and has raised funds that had helped families living with PI. The Scotiabank Charity Challenge is a special event for the organization because it brings together staff, patients, families and healthcare professionals for one day as they walk/run together to raise money.
Thanks to Immunodeficiency Canada’s generous corporate sponsorship covering our administration cost, 100% of your donation will go to help families and individuals living with PI. This year, 2016, over $11,000 was raised going directly to programs and services.… Read more
Immunodeficiency Canada brings 10 Warning Signs every parent should know to life
TORONTO, April 21, 2016 /CNW/ – Immunodeficiency Canada is honoured to have the generous support of the Jeffrey Modell Foundation in bringing the 10 Warning Signs to Canada.
“Our first project, in the early 1990’s was to develop the 10 Warning Signs of Primary Immunodeficiency with the American Red Cross and our newly established Medical Advisory Board. Since then, the 10 Warning Signs have been translated into more than 50 languages and have been distributed throughout the world.” Says Vicki Modell, Jeffrey Modell Foundation www.info4pi.org
Primary Immunodeficiency (PI) occurs in people with immune systems that are either broken or missing at birth. PI can appear in the form of “common infections”, sometimes leading physicians to treat the infection while missing the underlying cause. Infections can reoccur, leading to vital organ damage, physical disability, or even death.
“Something as simple as awareness can save lives and reduce suffering,” says Richard Thompson, CEO of Immunodeficiency Canada.
There are more than 250 different genetic defects of the immune system recognized by the World Health Organization as a Primary Immunodeficiency. One in 1200 people are affected. Approximately 29,000 Canadians suffer from PI and over 70% are undiagnosed. With early diagnosis, proper care and optimal treatment, individuals can live full and rewarding lives.
Immunodeficiency Canada was founded in 1999 by Dr. Chaim Roifman and John Perl to provides patient support, education, and research into a cure for PI. www.immunodeficiency.ca
During World PI Week, www.worldpiweek.org April 22nd – 29th, Public Service Announcements will be screened outdoors at Yonge-Dundas Square, Toronto. Cieslok Media is generously supporting this endeavor to generate awareness with screenings at 3:00 and 4:00 pm on Saturday April 23rd. A pre-screening reception for the families involved in the making of the video will be held at the Hard Rock Café.
“It is a privilege to be able to make a positive difference for Immunodeficiency Canada by reaching the masses and creating awareness through our digital displays at Yonge-Dundas Square”, says Jörg Cieslok, President & CEO of Cieslok Media. “At Cieslok Media, we are committed to being a good corporate citizen by leveraging our network of digital displays to assist organizations doing good for the public and community.” www.cieslokmedia.com
Implementation of newborn screening for SCID (Severe Combined Immunodeficiency), a major accomplishment for Immunodeficiency Canada.
“This is a monumental triumph to children born with severe combined immunodeficiency (SCID) and their families. Newborn screening will detect this problem early before complications develop, and allow for prompt life-saving interventions such as bone marrow transplantation.… Read more
Gina shows me a scrapbook she’s made of her son Julian when he was two years old. This scrapbook is different from the average family album; the photos are adjacent to long lists of medications. In the photos, Julian is smiling sweetly, his cheeks puffy from a reaction to the drugs. The scrapbook was made to commemorate his battle with primary immunodeficiency. Gina admits that she did it for Julian, who is now eight years old. “He has the right to know,” she says. “Look at where he’s been. Look at where he’s at now.”… Read more
Brenda Reid is the Clinical Nurse Specialist for the Immunology and Allergy clinic at Toronto’s Hospital for Sick Children. She’s also considered an official champion by the Immunodeficiency Canada for her work with patients with PI (primary immunodeficiency). Reid admits that her PI patient relationships span across her career. She’s currently on her second generation of patients; she currently sees the sons and nephews of men she had taken care of when they were teenagers. “It’s a privilege to be a part of these peoples’ lives,” she says.… Read more
Everyone Wins at Toronto’s Capital Connection’s Raffle
By Dana Ewachow
The reception for ACG’s (The Association for Corporate Growth) Capital Connection event took place in Ripley’s Aquarium in downtown Toronto on Tuesday November 11th. Capital Connection, where the best business leaders in North America mingle, sponsors one charitable organization each year; this year, Immunodeficiency Canada was the fortunate beneficiary. As a member of Immunodeficiency Canada, I helped set up our tables – one stacked with informative pamphlets for our cause, the other advertising the prizes for our raffle – on the bottom floor next to the Dangerous Lagoon. Out of the corner of my eye, I could see sharks circling in their tanks. In the other corner, I watched the business elite circle the reception, slick in grey and navy suits. I couldn’t help but be intimidated.… Read more
“She was a happy child. She loved art,” says Gagan Grewal, gesturing towards a framed picture of a feather that her young cousin, Japreet, had made.
I sit across from Gagan on a couch in her livingroom. Japreet’s parents live next door. “Her room is still her room,” she says, admitting they haven’t changed a thing. She describes the family’s current life as incomplete. I can sense this on the couch. It’s in the way that Gagan talks. It’s in the photographs that sit on the tables. This home aches. “You can’t make a puzzle with a missing piece,” she tells me.… Read more