By Dana Ewachow
I met with Wendy Shama at the Zavida Coffee right across from Immunodeficiency Canada’s downtown office. That day, she had to push back the time of the meeting by an hour. During the hour we spoke together, she received two calls. She is unmistakably busy, juggling her social work at SickKids and her involvement with Immunodeficiency Canada. She manages a multitude of demands, and she does them successfully. This year, she received the Dr. Beverly Antle Legacy of Hope Award. The award is presented to an outstanding social worker who through the integration of clinical practice, teaching, and research has made a difference in the lives of children and their families. The award is given out every two years.
Shama has worked at SickKids for 22 years, specializing in the Leukemia/Lymphoma population in addition to the Immunology families whose children are undergoing a bone marrow transplant. There are fewer families with children who have Immunodeficienciesis than children with Leukemia/Lymphoma, but Shama still devotes an incredible amount of time and focus on them.… Read more
Matt surrounded by family & friends
I walk into the ward at Sick Kids Hospital, and with the help of two patient nurses, I’m directed to the room I’ve been looking for. The room is spacious and lined with lounge chairs. Each chair is occupied by a child with their own IV, reading books and watching shows on portable devices, prepared for the long wait. Matt is in his own chair, with an IV tube in his arm. His mother, Sally, is sitting beside him. She waves me over.
Matt only started doing IVIG (intravenous immunoglobulin) therapy last May. He gets IVIG therapy every four weeks, thirteen times a year, travelling from his home in Barrie to the hospital in downtown Toronto. “We leave at quarter to seven in the morning,” Sally tells me, “and get back at quarter to seven at night.” … Read more
Another Success! Bidding for Health ran June 3 – 20, 2016
Thank you to our generous participants, donors and bidders who supported our annual online bidding experience to support kids and adults with Primary Immunodeficiency. Items were donated from Montreal to Vancouver. Bidding for Health closed till next year. See our 2016 generous donors here…… Read more
The Immunodeficiency Canada marathon team!!!
Immunodeficiency Canada has participated in the Scotiabank Charity Challenge since 2012 and has raised funds that had helped families living with PI. The Scotiabank Charity Challenge is a special event for the organization because it brings together staff, patients, families and healthcare professionals for one day as they walk/run together to raise money.
Thanks to Immunodeficiency Canada’s generous corporate sponsorship covering our administration cost, 100% of your donation will go to help families and individuals living with PI. This year, 2016, over $11,000 was raised going directly to programs and services.… Read more
Immunodeficiency Canada was honoured to have the support of Ciao Bella Dance Studio through a Casino Night that took place in Woodbridge, Ontario, February 6th, 2016. Special thanks goes out to the organizing committee.… Read more
How Nicola Yoon’s YA Novel Misrepresents Primary Immunodeficiency
An editorial by: Dana Ewachow
In early September, I heard about a new Young Adult novel that had a main character with SCID (Severe Combined Immune Defiency). As an employee of Immunodeficiency Canada (http://immunodeficiency.ca/) , I was excited. Primary immunodeficiencies are rarely presented in the media, beyond the occasional news piece, so finding a book that was predicted to grace the best-seller list felt like a step in the right direction. Nicola Yoon’s “Everything, Everything” was advertised to be the next big hit, with expectations of a movie deal (http://www.mtv.com/news/2261250/nicola-yoon-interview/). It was compared to John Green’s “The Fault in Our Stars”, a love story mixed with the obstacles of disease, and was expected to have the same success.… Read more
Julian and his Family’s Trial with P.I.
By: Dana Ewachow
Gina shows me a scrapbook she’s made of her son Julian when he was two years old. This scrapbook is different from the average family album; the photos are adjacent to long lists of medications. In the photos, Julian is smiling sweetly, his cheeks puffy from a reaction to the drugs. The scrapbook was made to commemorate his battle with primary immunodeficiency. Gina admits that she did it for Julian, who is now eight years old. “He has the right to know,” she says. “Look at where he’s been. Look at where he’s at now.”… Read more
A Look at RN Brenda Reid and The Alastair Fund
By: Dana Ewachow
Brenda Reid is the Clinical Nurse Specialist for the Immunology and Allergy clinic at Toronto’s Hospital for Sick Children. She’s also considered an official champion by the Immunodeficiency Canada for her work with patients with PI (primary immunodeficiency). Reid admits that her PI patient relationships span across her career. She’s currently on her second generation of patients; she currently sees the sons and nephews of men she had taken care of when they were teenagers. “It’s a privilege to be a part of these peoples’ lives,” she says.… Read more
Everyone Wins at Toronto’s Capital Connection’s Raffle
By Dana Ewachow
The reception for ACG’s (The Association for Corporate Growth) Capital Connection event took place in Ripley’s Aquarium in downtown Toronto on Tuesday November 11th. Capital Connection, where the best business leaders in North America mingle, sponsors one charitable organization each year; this year, Immunodeficiency Canada was the fortunate beneficiary. As a member of Immunodeficiency Canada, I helped set up our tables – one stacked with informative pamphlets for our cause, the other advertising the prizes for our raffle – on the bottom floor next to the Dangerous Lagoon. Out of the corner of my eye, I could see sharks circling in their tanks. In the other corner, I watched the business elite circle the reception, slick in grey and navy suits. I couldn’t help but be intimidated.… Read more
Remembering Their Cousin Japreet
By: Dana Ewachow
“She was a happy child. She loved art,” says Gagan Grewal, gesturing towards a framed picture of a feather that her young cousin, Japreet, had made.
I sit across from Gagan on a couch in her livingroom. Japreet’s parents live next door. “Her room is still her room,” she says, admitting they haven’t changed a thing. She describes the family’s current life as incomplete. I can sense this on the couch. It’s in the way that Gagan talks. It’s in the photographs that sit on the tables. This home aches. “You can’t make a puzzle with a missing piece,” she tells me.… Read more
Held August 26, 2015, Guelph, Ontario
The game started at 4:00 with the women’s team followed by Baden’s official kick off at 6:00 pm and the men’s team at 6:15 pm. Guelph Gryphons VS Ryerson Rams
Raffles and a barbeque fundraiser were hosted by the Klein Family. Exhibition game organized by Keith Mason, Head Coach, men’s team University of Guelph, www.gryphons.ca
To see raffle sponsors and read more about Baden… Read more