Immunodeficiency Canada endorses Health Canada recommendation to get a flu shot
Getting the
flu shot is your best defense against the flu. It is a safe and effective way
to protect you and those around you, and helps to avoid doctor’s visits and
unnecessary testing for COVID-19 during the ongoing pandemic.
It’s
important to note that the flu shot will not protect you from COVID-19 – you
should still wear a mask, wash your hands frequently and maintain physical
distancing from others.
Protect
yourself. Protect your loved ones. Get your flu shot!
“Do Something The Jeffrey Modell Story” follows young parents Fred and Vicki Modell who son, Jeffrey was diagnosed with a rare disease that leaves him frequently sick and perilously susceptible to even the most common cold. Jeffrey ultimately succumbs to his illness at the age of 15. Out of their devastating loss, Fred and Vicki turn to their enduring love for each other to find the strength to fulfill their promise to Jeffrey and they resolve to ‘do something.’
Be part of something big. Mark it on the calendar, GivingTuesday! Join millions of Canadians and give back to the charities that you care about – donate, on November 27th, 2018.
GivingTuesday inspires personal philanthropy and encourages bigger, better and smarter charitable giving during the holiday season, showing that the world truly gives as good as it gets. It proves that the holidays can be about both giving and giving back. It celebrates how Canadians can do more with their wallets then just shop and that we can give as good as we get.
100% of your donation will be used for patient support, in thanks to our corporate sponsorship which covers administration costs.
Join the #PIechallenge to raise awareness of PI (Primary Immunodeficiency).
Bake a homemade pie, post a photo on social media with the tag #PIechallenge and challenge friends to do the same. Be creative with your pies. The best 3 pictures will be judged through social media and awarded prizes! You have until March 14 to enter the contest.
The letter of intent deadline for The Chaim Roifman Scholar Award for Senior Investigators is soon approaching on Friday September 28, 2018. To inquire more, please visit our Senior Investigator Research Grant page.
Our team has participated in the Scotiabank Charity Challenge since 2012 and has raised funds to help families living with PI. The Scotiabank Charity Challenge is a special event because it brings together staff, individuals living with PI, families, and healthcare professionals for one day as they walk/run together to raise money.
Join the 2018 team today. 100% of your donation will go to helping improve the lives of people with PI, in thanks to our corporate sponsorship which covers administration costs.
A diagnosis of Primary Immunodeficiency can throw a family into financial crisis. A parent may have to stop work, there is travel back and forth to many medical appointments and the child and guardian may have to go to a major city for treatment. Additional costs for some medications, medical equipment, travel, accommodation, parking, meals, all creates a strain when the families energy should be on their child getting better. You can make a donation to help a family in crisis near you.
Immunodeficiency Canada is working to spread awareness, help find cures and support those who suffer from Primary Immunodeficiency as well as their families. As part of our Partner in Awareness program we are asking for your help to raise awareness and raise money to support educational programs.
Participation in Partners in Awareness could take many forms. At the most basic level we would like to add your contact information to our database, and ask that you join or link to us on Facebook, Twitter or LinkedIn and sign up for our newsletter. Your organization may also:
Disseminate our 10 Warning Signs to colleagues or customers
Hold an awareness day
Host a fundraising event
Donate directly to help us do our work
We can provide speakers to help with events and also provide exposure on our website, social media and newsletter before, during and after your organization’s involvement.
Wouldn’t it feel great to know that your organization’s involvement could help someone with a Primary Immunodeficiency.
Immunodeficiency Canada brings 10 Warning Signs every parent should know to life
TORONTO, April 21, 2016 /CNW/ – Immunodeficiency Canada is honoured to have the generous support of the Jeffrey Modell Foundation in bringing the 10 Warning Signs to Canada.
“Our first project, in the early 1990’s was to develop the 10 Warning Signs of Primary Immunodeficiency with the American Red Cross and our newly established Medical Advisory Board. Since then, the 10 Warning Signs have been translated into more than 50 languages and have been distributed throughout the world.” Says Vicki Modell, Jeffrey Modell Foundation.
Primary Immunodeficiency (PI) occurs in people with immune systems that are either broken or missing at birth. PI can appear in the form of “common infections”, sometimes leading physicians to treat the infection while missing the underlying cause. Infections can reoccur, leading to vital organ damage, physical disability, or even death.
“Something as simple as awareness can save lives and reduce suffering,”
Richard Thompson, CEO of Immunodeficiency Canada
There are more than 250 different genetic defects of the immune system recognized by the World Health Organization as a Primary Immunodeficiency. One in 1200 people are affected. Approximately 29,000 Canadians suffer from PI and over 70% are undiagnosed. With early diagnosis, proper care and optimal treatment, individuals can live full and rewarding lives.
Immunodeficiency Canada was founded in 1999 by Dr. Chaim Roifman and John Perl to provides patient support, education, and research into a cure for PI.
During World PI Week, April 22nd – 29th, Public Service Announcements will be screened outdoors at Yonge-Dundas Square, Toronto. Cieslok Media is generously supporting this endeavor to generate awareness with screenings at 3:00 and 4:00 pm on Saturday April 23rd. A pre-screening reception for the families involved in the making of the video will be held at the Hard Rock Café.
“It is a privilege to be able to make a positive difference for Immunodeficiency Canada by reaching the masses and creating awareness through our digital displays at Yonge-Dundas Square”, says Jörg Cieslok, President & CEO of Cieslok Media. “At Cieslok Media, we are committed to being a good corporate citizen by leveraging our network of digital displays to assist organizations doing good for the public and community.”
The game started at 4:00 with the women’s team followed by Baden’s official kick off at 6:00 pm and the men’s team at 6:15 pm. Guelph Gryphons VS Ryerson Rams
Raffles and a barbeque fundraiser were hosted by the Klein Family. Exhibition game organized by Keith Mason, Head Coach, men’s team University of Guelph, www.gryphons.ca
As we come to the close of another year at Immunodeficiency Canada, we are thankful for the love and support shared with us to help us provide patient support, education and research for a cure for Primary Immunodeficiency.
We sincerely thank the individuals, groups, companies, volunteers, and you that have allowed us to saves lives through newborn screening in Ontario (10 infants diagnosed and treated) improve treatments for all by getting individuals diagnosed and connected to an Immunologists ,and building a strong PI community across Canada