Jeffrey Modell Foundation Research Library
The Jeffery Modell Foundation (New York City) provides comprehensive materials via the National Primary Immunodeficiency Resource Center Research Library. This resource, containing thousands of recently published papers, is excellently categorized and cross-referenced. Link to site
Provincial Blood Coordinating Office (British Columbia)
Subcutaneous Immune Globulin (SCIG) – A provincial working group chaired by the BC Provincial Blood Coordinating Office has developed a resource kit for health authorities and/or hospitals wishing to establish SCIG home infusion programs. The kit is available at the link below in PDF. Link to site
The Immunodeficiency Foundation Consulting Immunologist Program
The IDF Consulting Immunologist Program is a physician-to-physician service that provides a free second opinion or consult on primary immunodeficiency diseases since 1998.The IDF Consulting Immunologist Program offers: free physician-to-physician consults; consults or second opinions on issues of diagnosis, treatment and disease management; access to faculty of recognized leaders in clinical immunology. Link to site
The Journal of Allergy and Clinical Immunology
The journal is an official publication of the American Academy of Allergy, Asthma, and Immunology. The journal brings timely clinical papers, instructive case reports, and detailed examinations of state-of-the-art equipment and techniques to clinical allergists, immunologists, dermatologists, internists, and other physicians concerned with clinical manifestations of allergies in their practice. Articles cover such topics as allergic and immunologic diseases, the latest therapies and treatment programs, occupational/ industrial allergy, and studies of antigens, allergens, and the environment. Link to site
Paediatric Infectious Diseases Website
Lists a number of useful links to resources, associations, journals, etc. Note, several of these links require memberships or subscription fees. Link to site
Basic information on PI is available at the following sites.
American Academy of Allergy, Asthma & Immunology
American Academy of Family Physicians
Canadian Agency for Drugs and Technologies in Health
Subcutaneous Versus Intravenous Immunoglobulin for Primary Immunodeficiencies: Systematic Review and Economic Evaluation.
Clinical Immunology Society
Educational Resources provides the following:
The mannose binding lectin pathway: function and diseases The MBL pathway demystified for clinicians. Atypical hemolytic uremic syndrome and complement regulatory protein deficiencies An excellent overview of this new phenotype associated with complement disorders. Adult hypogammaglobulinemia: CVID and thymoma Common variable immune deficiency review. The genetics and the association with thymoma are particularly well reviewed. European Consensus Document – C1 Esterase Inhibitor Deficiency A very comprehensive document covering diagnosis, pathophysiology and therapy. Practice Parameters: Primary Immunodeficiencies An excellent overview of accepted diagnosis and treatment. Complement Deficiencies A brief overview of the clinical manifestations and inheritance. Fetal and Neonatal Immunologic Development A comparison of the onset of different immunologic effector arms. Primary Immunodeficiencies A table of common immunodeficiencies suitable for downloading to your PDA. Normative Data T Cells A helpful resource you can download to your PDA. Laboratory Investigations for Immunodeficiencies Demystifies the laboratory investigations used in the diagnosis of immunodeficiencies. Transient Hypogammaglobulinemia of Infancy An overview of the literature on this common condition. Chromosome 22q11.2 Deletion Syndrome An overview of the second most common primary immunodeficiency. Periodic Fever Comparisons A practical comparison of the clinical features of the periodic fever syndromes. Overview of Severe Combined Immune Deficiency An overview of SCID tabulated by lymphocyte phenotype.
Immune Deficiency Foundation
National Institute of Child Health and Human Development
Population Prevalence of Diagnosed Primary Immunodeficiencys in the United States
A leading journal of original scientific research, global news, and commentary. www.sciencemag.org SCIENCE VOL 317 3 AUGUST 2007
Primary Immunodeficiences: A field in it’s Infancy
World Health Organization/International Union of Immunological Societies (WHO/IUIS) Expert Committee Report
Since the early 1960’s, the Committee on Primary Immunodeficiencys has met every two or three years in various parts of the world to define and classify the Primary Immunodeficiencys. The resulting report not only provides vital information to the medical community, but is also used by various governments to help determine health care policy. It is available through The Journal of Allergy and Clinical Immunology. October 2007,Volume 120, Number 4 can be found at www.jacionline.org. A subscription or fee to purchase is required.