Immunodeficiency Canada, a pioneer in bringing newborn screening for SCID (Severe Combined Immunodeficiency) to Canada. In 2013, Ontario was the first province to test for SCID.
“This is a monumental triumph to children born with severe combined immunodeficiency (SCID) and their families. Newborn screening will detect this problem early before complications develop, and allow for prompt life-saving interventions such as bone marrow transplantation. Usually the diagnosis of SCID is either missed or delayed until the age of 6-12 months of age, after patients suffer from severe and recurrent infections, and sometimes irreversible damage to organs such as the lungs. Newborn screening for SCID will no doubt save many lives and prevent suffering of children.”
Professor Chaim Roifman, MD, FRCPC
Chair, Immunodeficiency Canada
“We are proud of our initiative to bring newborn screening for SCID to Ontario and look forward to working with the other provinces and territories to make it nation wide.”
Chief Executive Officer
Newborn Screening for SCID expands to B.C. and Yukon
Newborn Screening for SCID – Manitoba
Newborn Screening for SCID – Alberta
Nova Scotia starts Newborn Screening for SCID
Immunodeficiency Canada SCID Media Release
CTV News, Ontario to start screening babies for so called “bubble boy disease”
Globe & Mail, Ontario to screen all children for SCID
Lori Peters shares her story of her children affected by SCID