A Celebration of Lives

She had a happy childhood,and was full of energy and life. Suddenly, in her late teens, she became critically ill with hepatitis. The cause was unknown, and she spent the next few years seeing specialists and trying to beat the disease. Some doctors thought the disease would be terminal. They treated the disease but did not look deeper. Finally, after …

Logan Miller passed away after a courageous battle with Acute Respiratory Distress Syndrome at Vanderbilt Children’s Hospital on January 28, 2020. Logan was an amazing son, adored big brother, and faithful friend. He lived with DiGeorge Syndrome, and while it meant Logan had physical limitations, he did not use it as an excuse or allow it to dampen his love …

Samantha Penn was a little more than a year old when she started developing colds and infections constantly. Doctors didn’t have a clear idea as to why the toddler couldn’t recover from her illnesses, and they never mentioned to her parents, Sara and Jeremy Penn, the possibility that their baby could have a fatal medical condition. In early 2011, when …

Marissa died 47 days after being admitted to hospital intensive care unit (ICU) with breathing problems. She lapsed into a semi-coma soon after. She was laid to rest besides the graves of her elder sister, Sofea Hani who died in 2008, and elder brother Muhammad Zulhakimi who died in 2010. A few months after she was born, Marissa was diagnosed …

James was born a beautiful healthy baby on 23rd February 2016. When James was 8 weeks old he developed a cough after having his immunizations. He was initially treated in hospital for 6 days with pneumonia. Over the following week James did not improve and after several visits to his GP, James was readmitted to Hospital where he became increasingly …

Brandon’s battle began in November of 1993 when he came down with his first cold. He was 6 months old at the time and appeared to be a “normal” baby without any infections until he did not respond to a cold like a “normal” baby would. He was admitted to the hospital when he showed failure to thrive. He had …

Diagnosed with Severe Combined Immune Deficiency (SCID) or “Bubble Boy Disease” since birth, Ryan Wagner became the first and only person to date to be treated with full-body radiation and chemotherapy for the disease. The treatment was done shortly prior to receiving a significant bone marrow transplant to reset his immune system. Donna Wagner described her son as very shy …

Jeffrey, was born in 1970 . Jeffrey’s first ten months were peaceful and happy. He plunged into life with joy and quickly developed the cheerful, outgoing personality that everyone remembers about him.But then things started to go very, very wrong. Just before his first birthday, Jeffrey developed a hepatitis-like condition and was hospitalized with high fevers, jaundice, and an enlarged …

He ate, played and learned like any other kid. But David Vetter’s life unfolded in a series of unusual environments: plastic, bubblelike enclosures that protected him from germs. He had severe combined immunodeficiency (SCID), and even a seemingly harmless germ could kill him. David, who lived in Texas, wasn’t supposed to grow up in isolation. But while doctors waited for …

I said to myself Allah has blessed us with another son. So charming he still weighted 5 kg at 9 months of age. He got sepsis and the doctors told us it was a reaction to some medication. The boy started falling sick, infection after infection moving from one pediatrician to another and having the same signs of sickness as …

He was my first son and was a big baby weighing 5 kg. Being our first child, everyone was super happy. He grew normally, but at the age of 3 he started falling sick with severe infections. At 4 years old, half of his lungs were removed. One evening he was turning and tossing in bed. After checking his temperature, …

Braxton Andrew McGonigal born June 25, 2013. Braxton was born healthy and happy just like every baby and at 5 months old he developed a skin rash so I asked his doctor to send us to a skin pediatric specialist. The doctor took one look at Braxton, and knew what it was. On December 10, 2013 we were admitted to …

October 29, 2001 was the happiest day of my life. It was the birth of our beautiful daughter, Brooklyn. By two months of age, Brooklyn had a clear, runny nose but her doctor assured me there was nothing to worry about when she received her first immunization shot. Then there was a series of hospital admittance as Brooklyn took ill …

She was a happy child. She loved art. Japreet’s condition was a complete mystery. With a family that had no history of serious medical issues, Japreet’s physical health was strange and scary. When she was eight, she was suffering fevers three or four times a year. She caught pneumonia and was in and out of hospital. They discovered that Japreet …