“We cannot forget the stories of individuals who are no longer with us.”
James Ash
2016 –
2017
James was born a beautiful healthy baby on 23rd February 2016. When James was 8 weeks old he developed a cough after having his immunizations. He was initially treated in hospital for 6 days with pneumonia. Over the following week James did not improve and after several visits to his GP, James was readmitted to Hospital where he became increasingly poorly, having seizures, requiring more oxygen support and laid on the bed unable to move. After two very distressing and frustrating weeks of doctors telling us James just had a chest infection and epilepsy, they finally admitted that they didn't know what was wrong with James and that he needed to be ventilated and moved to another hospital on the Intensive Care Unit. Despite numerous more hospital admissions, James grew all his hair back and gained lots of weight. But as Christmas approached, James got poorly again and started having infantile spasm seizures which were constant throughout the day and night and were uncontrollable.
James, lost his fight with life on the 18th February 2017, 5 days before his first birthday because he had Severe Combined Immunodeficiency (SCID).